Academic wins national award for work to improve pregnancy care for women with rare genetic condition
Friday 10 December 2021
A Coventry University academic has won a national award for her research around a rarely diagnosed genetic condition that is thought to affect one in 20 pregnancies.
Dr Sally Pezaro received the Royal College of Midwives Partnership Working award for her work as part of a team of health professionals developing care and support for pregnant women with Hypermobile Ehlers Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorders (HSD).
The team undertook a review of the research and evidence on the condition and produced a range of educational material including a Maternity Tool for midwives and other health professionals.
These have been developed with the input of women with hEDS/HDS so that they focused on what mattered most to them. The resources include a learning module on the RCM’s e-learning platform and have received praise from women and health staff as far afield as Australia.
I am honoured and humbled to receive this award on behalf of www.hEDSTogether.com, particularly as the other entries in this category were incredibly strong. I really hope this award gives us further opportunities to highlight the needs of those childbearing with Hypermobile Ehlers Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorders (HSD), so that midwives and other perinatal staff may continue to deliver excellence in care every day.
Research is so important because it makes care safer and better.
This is a wonderful example of research doing just that and having a direct and positive impact on the care women receive in our maternity services and internationally.
Sally’s work epitomises the real-world value of research and her focus on having the input of service users at its centre is commendable. This is a great piece of work that is still developing and will pay more dividends in the future, and for this Sally is a very worthy recipient of this award.
We pride ourselves on our impactful research and Sally continues to make a positive and direct impact on care in the midwifery sector through her research.
Sally is the Midwifery Champion for Nursing Now Challenge and is leading an exciting new collaborative initiative to enhance perceptions and increase the value placed upon the midwifery profession on a global scale. She is an ambassador for our university, midwives, research, higher education, and the RCM and I am delighted to see that her exceptional research has been recognised.