Keratoconus

An eye condition often known as 'conical cornea'.


The Effect of KC
The effect of keratoconus varies hugely from person-to-person and day-to-day. However this picture, (large file!), or this one gives a fair impression of my vision.

Many other similar images are available

A vision simulator website which allows the simulation of many vision defects



"Keratoconus", August 2002 - a collage



The fitting of contact lenses in KC
A corneal lens:
It is hard to fit a contact lens on a cone-shaped cornea
Reproduced from 'What is Keratoconus' by NKCF - with permission

A scleral lens:
A scleral lens
From Innovative Sclerals Ltd web page. They made my scleral lens

A brief history of contact lenses by Innovative Sclerals

The Scleral Lens Center, including insertion & removal videos



Corneal graft diary: first eye (.doc file), July 2002

Corneal graft diary: second eye (online blog), June 2008



UK Keratoconus Self Help and Support Group
Registered Charity 1057629

A support group which has been running since 1991. They offer meetings, maybe with guest speakers, members' meetings in London, Birmingham (contact details below), Glasgow and Leicester. They also produce newsletters and online resources. They do some fund-raising for KC research.

They hold a conference every 2 years, or so. These include talks from surgeons, optometrists etc, as well as members' experiences. The booklets/DVDs of the conferences are distributed to all their postal mailing list members.

They've also produced leaflets on 'Supporting Students with Keratoconus', 'Keratoconus at Work' and 'Keratoconus - How the law can help you at work' - which are downloadable from the website.

To join the group, and receive the regular newsletter, email: info@www.keratoconus-group.org.uk

Or contact:
        Anne Klepacz
        phone: 020 8993 4759
        PO Box 26251, London W3 9WQ



Keratoconus Support Group (Midlands)

A branch of the UK KC support group has been formed in the Midlands. They hold regular meetings.

Contact:
        Ms Marian Bargery
        phone: 01746 767906
        email: marian@keratoconus-group.org.uk



National Keratoconus Foundation (NKCF)

A medical group based at Cedars Sinai Medical Center in L.A., California which supports patients and research into keratoconus. They publish free newsletters, host free seminars (in USA) and operate a brilliant Internet mailing-list (kc-link).



Center for Keratoconus

A patients' support group, based in Reseda, California. Contains a number of useful resources including descriptive infomation, an online support site and research papers.



Return to Lisa's home page

created June 1997
last updated Aug 2010